Colleen Conner Ziegler is a lung cancer survivor and Patient Advocate. She lives in Rochester, New York with her husband, Tom and their daughter Taya. She was diagnosed with Stage IV ALK positive NSCLC in May of 2015 at the age of 58. She began Alectinib as her first line of treatment and is currently on this treatment.
After spending twenty-two years in the pharmaceutical industry, Colleen served her community in a variety of endeavors over last seventeen years. She has served on several board of directors as well as advisory board. Her primary focus prior to her diagnosis was on children’s education as well as woman’s health issues.
Following her lung cancer diagnosis, she turned her attention to lung cancer advocacy. Her advocacy work for lung cancer includes:
- Co founder of Life and Breath (LAB), a grass root lung cancer organization which organized two rallies on Capitol Hill with the goal of raising awareness and research funding for lung cancer
- Co-founder of ALKFusion, a patient driven organization whose vision is to initiate and support patient centric research
- Participant in several lung cancer patient advisory boards
- Volunteer with the Lungevity Peer-to-Peer mentor program connecting newly diagnosed patients with a mentor to guide them through their diagnosis and treatment.
- Participated in patient focused videos and print materials on lung cancer diagnosis, advocacy, and living with lung cancer.
- Participated in the ALK Positivity Project with Genentech.
- Volunteer with Lung Cancer Alliance Advocacy Day
Twitter: @ZieglerColleen http://twitter.com/ZieglerColleen